Speakers are Noah’s OBSESSION. Especially speakers with music playing from them. Since age one, Noah has, to some degree, had an obsession with music and speakers. However, it seems lately it’s gotten much worse. We can’t go anywhere that may have music or we know we’ll have a fight with the speakers. He’ll even do it in stores now with the overhead music. He’ll point to the speakers, look at me and say, “Speaker!” He never likes it (and that’s putting it mildly) when I tell him he can’t have the speaker. Nothing else matters in those moments.
Noah enjoys going out when I do errands but now it’s getting to a point where I’d rather leave him at home with his dad. You could say, “Hey, why don’t you bring your own Bluetooth speaker for him to play with for situations like that!” We’ve tried that. It didn't work long. Any speaker he doesn’t have is considered a new and interesting one he must explore. His own speaker, in the moment, is old news and wants nothing to do with it, so we have learned to just leave it at home.
So, the splash pad…The whole way there, Noah, with his still limited vocabulary, kept saying, “Get in water,” so I figured he would have some fun getting wet and beating the 96 degree heat.
When we got there, we immediately heard music coming from somewhere nearby the splash pad. I knew then--there would be no splash pad play for Noah. I knew his speaker obsession would take over. He immediately followed the music to the baseball field close by and when he found the speaker, there he stayed, next to his newfound thing of awesomeness.
I stood where I could keep an eye on both kids—my daughter in the splash pad having fun with a few girls she met and the other, in the opposite direction, obsessing over a speaker at the baseball field. So, there I stood until the gentleman who owned the Bluetooth speaker…left the park…with speaker in hand!
It took a moment for Noah to realize the speaker was indeed gone. When he figured out this cool, new speaker he found was no where to be found, a Noah-sized tantrum ensued for all around the nearby area to “enjoy,” creating all kinds of attention in our direction.
Not quite understanding why the speaker wasn’t there anymore and repeating, “Speaker” over and over, I knew we would have to leave the park soon. Noah still wanted nothing to do with the splash pad, even though I tried a few more times to coax him in that direction. It’s just easier to pack up and head home, rather than letting Noah cry for something he can’t have and/or won’t come back like he wants wishes it too. He doesn’t or can't accept the fact that the speaker is gone. The music is gone. He just wants it to come back and diverting his attention to something else in those moments is almost impossible.
This is hard on my daughter sometimes. All I want is to let her do her thing and have fun but more often than not, it has to be cut short because Noah can’t get over his obsession and that’s hard. I try to make up for it when I can. That day, it was just time to go.
Noah is six and has Lowe Syndrome. Lowe Syndrome a rare, genetic disease that mainly affects the brain, eyes and kidneys. It is also the reason he has a short stature for his age.