I always love seeing Noah’s progress. Especially when it’s something we have been trying so hard to achieve. This year, we have been trying to get Noah to participate more in activities with other kids. Field day was a great day to see what he would or would not do. For those who do not know my son, Noah has a rare, genetic condition called Lowe Syndrome. It mainly affects the brain, eyes, and kidneys and presents primarily in males.
To put it simply…Noah does what Noah does. It’s nice he is, to some degree, independent. Noah can be left alone to play with his toys or whatever is striking his fancy at the time and he doesn’t require constant attention. However, it would be nice to see him participate with his classmates in recess, gym class and like today, field day.
I couldn’t watch the morning part of field day due to work commitments but I did catch the afternoon part of field day. His teaching assistant, along with my encouragement, got Noah to somewhat participate in two activities before he refused to do anymore. Noah “attempted” the Egg Relay and Team Hoola-Hoop Challenge before crashing on the blanket for the rest of the activities.
I am proud of what Noah tried to do, even if he didn’t completely cooperate. It’s still better than a year ago, before we started behavior therapy. Even those two activities Noah would have thrown a fit to have to do in the first place. I’m always happy with progress. Even the smallest amounts of it.
Until next time in our MADdix World…
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